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Growing Through
the Journey

Support for therapies, milestones, development, diagnoses, and the years that follow.

Development after the NICU looks different for every child. Whether your baby is catching up, facing new challenges, or celebrating small victories, you don’t have to navigate it alone. Explore resources to help you understand development, access therapies and services, and feel empowered every step of the way.

Every child is unique. Use this page to learn, ask questions, and connect with the support your child and family deserve.

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Explore topics and trusted resources to support your child’s growth.

Development & Milestones

Learn about typical milestones, adjusted age, corrected age, and what to look for as your child grows.

  • Developmental Milestone Checklists

  • Corrected Age Explained

  • When to Talk to Your Pediatrician

  • Activities to Support Development

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Trusted Resources 

Therapies & Early Intervention

Therapies can support your child’s development and help them reach their fullest potential.

  • PT, OT, Speech & Feeding Therapy

  • Finding the Right Therapy Fit

  • Florida Early Steps (0–3 Years)

  • What to Expect in Therapy

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Trusted Resources 

Diagnoses & Medical Conditions

Understand common conditions that may affect NICU graduates and where to find reliable information.

  • Common NICU-Related Diagnoses

  • Understanding Prognosis

  • Questions to Ask Your Care Team

  • Second Opinions & Referrals

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Trusted Resources 

Neurodevelopmental Support

Resources for learning about the brain, behavior, learning, and long-term outcomes.

  • HIE & Brain Development

  • Learning & Cognitive Support

  • Behavior & Sensory Needs

  • Support for Attention & Regulation

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Trusted Resources 

Follow-Up Care & Monitoring

Ongoing follow-up helps track progress and address needs early.

  • NICU Follow-Up Programs

  • Specialty Care & Subspecialists

  • Tracking Growth & Development

  • How to Prepare for Appointments

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Trusted Resources 

Family Support & Connection

Connect with other families and find support as you navigate the ups and downs.

  • Parent Support Groups

  • Online Communities

  • Mentorship & Peer Support

  • Respite Care & Family Resources

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Trusted Resources 

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Preparing for Home

Practical guidance for life at home after the NICU

Family & Emotional Support

Support for parents, caregivers, & siblings

This resource was created by a NICU parent and advocate, with lived experience navigating neonatal care, medical language, and family support gaps.

Content is intended for emotional support and education and does not replace medical guidance.

The Next Journey
copyright 2026
contact: 954-647-3553
email: christiana@thenextjourney.org

 

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